3. Including and working with people with disability

People shared that it’s important to make sure:

The NDDA website on a computer, with a thumbs up icon.

  • the NDDA works well

A person with disability showing a group of people something on a clipboard.

  • people with disability are involved.

A person with disability and someone else working on a laptop together.

They said it’s about working with people with disability, not working for them.

A person pointing to themselves with an icon of some Rules above them.

And they said people are experts in their own lives, so they should be the ones who make the rules.

Governments can fix most of the problems people worry about by working with people with disability to:

A person with disability working on a computer.

  • run the NDDA

The NDDA website on a computer with a thumbs up icon.

  • make sure the NDDA works well.

Three people working together on a laptop, with an arrow pointing towards the future.

People told us it’s important to work with people with disability for the whole project, not just at the start.

A person in a wheelchair giving a talk to some people.

They told us it’s important to work with people with disability who:

  • are experts at their jobs, for example in data
  • have lived experience of disability.

A diverse group of people pointing at themselves with their hands raised up.

And it’s important to work with people:

  • who have different disabilities
  • from different backgrounds
  • with different experiences.

A person with disability working with someone else on a computer.

They shared that people with disability should run the NDDA.

This means hiring people with disability to work:

  • on the NDDA
  • with the community.

A group of people working on a laptop together.

They also shared that people with disability should be part of checking that:

  • the NDDA works well
  • people with disability and their data are safe.

A carer helping an older person.

And they told us that other people in the community must also work with them on this.

This includes families and carers.

It also includes people who work for:

An icon of a group of people in front of a building with a disability icon on it.

  • disability organisations

A person with their hand on someone else's shoulder.

  • advocacy groups

Three people, one person is pointing at themselves.

  • providers.

Protecting people with disability and the NDDA

A group of people having a meeting.

People shared that there should be a group of people who make sure:

A person reading a document, with a thumbs up icon.

  • other people use the data well

A group of people pointing at themselves with a safety icon above them.

  • people with disability are safe when people use their data.

A group of people with two different data icons and an arrow pointing to one of them.

This group would also decide what types of data the NDDA collects.

A rules icon and a laws icon.

People told us there also need to be laws and rules to make sure everyone does the right thing.

A government building and three options, A, B and C, with an arrow point to option A.

And governments need to share information with the community about:

  • how they make decisions
  • what decisions they make.

A person looking worried while reading a document. There is an icon of a stack of rules above them.

But people also worried if there are too many rules, it can be hard to find and use NDDA data.

How can governments include people with disability?

People shared that governments can include people with disability by:

Two people shaking hand over a table.

  • hiring them

A government building with an arrow pointing to a data icon.

  • sharing data about people with disability.

A person in a suit giving a talk to a big group of people.

They told us that governments need to keep working with the community.

And they need to work with them in different ways for different people.

Governments can:

A person with their hand raised and a speech bubble with a lightbulb in it.

  • make sure people have time to share their ideas

A person with a smartphone and social media apps on the screen.

  • connect in different ways, for example on social media

Two people smiling, with a document between them.

  • work with people who don’t use technology that much.

A person reading a document.

People shared that governments must support people with disability to help run the NDDA.

For example, sharing information that is easy to understand.

A person in a wheelchair using a laptop.

They also told us that people with disability must be able to find and use all parts of the NDDA.

This includes how:

A person reading a document with a data icon above them.

  • people can use the data

A government building. Above it is an icon of data on a computer and an icon of data on a document.

  • the government shares the data.

A person giving a thumbs up with a government building behind them.

People shared that they would be able to trust governments more if they do all these things.