We learnt a lot from people’s ideas and experiences.

Data can really affect what:

• decisions governments make

• services they provide to the community.

And the way people collect and use data can affect the lives of people with disability.

When we started our research, we wanted to know if the NDDA can make the lives of people with disability better.

And from what we learnt, it can.

But only if people with disability have a big part in it that keeps going.

The NDDA must include people with disability in all parts of:

• running it

• making data better

• explaining the data

• checking to make sure it works well.

The NDDA must collect good data.

And it must fill any gaps in the data.

The NDDA must be online.

It must also be easy for everyone to find and use.

And governments must build trust with the community by:

• sharing information about what they do

• working with the community

• being leaders in including people with disability.

People who do research should understand that people with disability:

• have many strengths

• are the experts in their own lives

• should be supported to work towards their goals.

Research shouldn’t just be for people with disability, it should work with people with disability.

It can take governments longer to make decisions when they work with the community and researchers.

But governments and researchers need to make sure they make time to work with people with disability.