2. What people worried about

A person rubbing their chin, and a government building in the background.

People shared that their experiences with the National Disability Insurance Scheme (NDIS) meant they didn’t trust governments as much.

And they worried about how people would use the data.

A person in a suit with their thumbs up. Another person has their arms crossed, looking upset.

They worried that governments could use the NDDA to help themselves and not help people with disability at the same time.

A person looking confused with their laptop open.

For example, the government could collect the data but not share it in a way that’s easy to find and use.

A person is pointing at themselves, with an information icon and an arrow near it pointing up.

Some people said they wanted more information before they could be sure the NDDA would work well.

The NDDA website on a computer, with a change icon next to it.

People were also worried about how the NDDA would change over time.

A person in a wheelchair giving two thumbs up. There is a calendar with an arrow pointing into the future.

They wanted to make sure the NDDA works well for people with disability in the future.

A group of people in a meeting looking at a laptop together.

People told us that the best way to stop these things is to make sure people with disability help:

A person deciding between two data icons.

  • decide what data to collect

A person holding a clipboard with data on it. They are giving a thumbs up.

  • collect and understand data

A person speaking to a group of people.

  • run the NDDA

The NDDA website on a computer, with a thumbs up icon.

  • make sure the NDDA works well.

Ways people shouldn’t use the NDDA

The NDDA website on a computer, with a cross on it and the number 3.

People also shared 3 things people must not use the NDDA for.

The NDDA shouldn’t be used for anything to do with how much money people with disability:

A blind person next to a money icon, and an arrow pointing towards a government building.

  • must pay to the government, like taxes

A government building near a money icon, with an arrow pointing to a person with disability.

  • get from the government, like funding.

A person with a guide dog near a money symbol, and an arrow pointing to a person supporting a blind person.

They also said the NDDA shouldn’t be used to take money or support away from people with disability.

An ID card with the name Jane Doe on it.

The NDDA shouldn’t be used to make personas that governments can use to guess how much support a person needs.

A person using a laptop, with an arrow pointing to an icon of a person. There is a photo of a person above, but it has a cross on it.

When someone collects data about a group of people, they can use the data to make an example of a person from that group.

But the person isn’t real.

We call this example a persona.

A document saying Buy Now, with a money symbol on it. There is a cross on the document.

Companies shouldn’t use the NDDA to sell things to people.

For example, banks.

A person in a wheelchair holding a document. There is a person standing nearby, pointing to the document.

But some people shared that this would be okay sometimes.

For example, a provider using this information to make their services better.