Participants with intellectual disability told us the word ‘privacy’ was hard to understand.

They thought it meant physical privacy, like knocking on a door before going into someone’s room.

Participants with intellectual disability also explained the word ‘data’ was hard to understand.

They thought data was just a number.

But they liked it when we used the word ‘information’ instead of ‘data’.

Participants with intellectual disability said data about them isn’t enough to help other people understand them.

Governments need to work with people with intellectual disability to help them know how their data is being used.

CaLD participants said they trusted government to use their data in the right way.

They also told us that speaking English as a second language stopped them finding and using information.

One CaLD participant explained that there are words that other languages don’t have, like ‘privacy’ and ‘consent’.