Participants told us that they worry about how data is collected now.

They also said that more work needs to be done before the NDDA can be helpful.

Participants explained that data collected by providers doesn’t show what they are doing.

And they told us the way governments collect data now doesn’t help them:

• collect good data to use

• understand what life is like for people with disability.

Participants said that the data governments collect and use doesn’t focus on people’s lives.

And CaLD participants told us it can be hard to share the right information if you don’t speak English well.

Lots of participants talked about keeping data up-to-date and true.