Participants were happy with how the NDDA keeps their data safe and private.

But they worried about how safe their data would be after it is shared with other organisations.

Participants want more choice and control about when they want their data shared.

They also shared that the data being collected should be true and good quality.

And they told us people with disability should be involved in all parts of the NDDA.

There were 8 important ideas that came up in our research.